It's been 4 1/2 months since Ace was born, and I'm just beginning to wade into the world of Down syndrome awareness and inclusion. I've been taking a seat here behind my screen, just watching and paying attention to what's going on in this subculture I've just entered.
So much of my learning is coming from some of my favorite Instagram accounts:
@etst -- Kelle Hampton is the author of Bloom: Finding Beauty in the Unexpected and blogger at kellehampton.com. She has such style and takes beautiful photos. She has introduced me to Ruby’s Rainbow, a beautiful scholarship program that is helping students with DS attend college. Check it out. (And then try not to cry!) She's also introduced me to the #changingthefaceofbeauty campaign, which is working to make advertising more inclusive of people with disabilities.
@theluckyfewofficial -- I love Heather Avis in this Instagram account. I don't know her at all, but her spirit is lovely and so are her three kids, two of whom have Down syndrome. You guys have to watch Macy dance. She is dancing all over this account and I just adore her. Heather also blogs at heatheravis.com and is the host of my favorite Down syndrome hashtag #theluckyfew.
Heather Avis' account introduced me to @littlest_warrior (Littlest Warrior Apparel), who is currently selling so many amazing t-shirts that I keep almost buying. Here's Ace wearing his "chromosomally enhanced" Littlest Warrior shirt last month.
Also, I'm a big fan of @jimbo_is_the_man. There's just something about seeing an older man with Down syndrome living a full, joyful life that gives me a lot of hope for my little guy.
Have you seen the video of Gungor's newest song about Lucy, their little one with Down syndrome? It is lovely:
Chris and I are only just learning (and watching) what Ace's life will mean for us. But we're so thrilled to step into advocating on behalf of Ace and all the little ones born with DS, many of whom do not have the support or opportunities Ace will have.
This year we're walking in the Buddy Walk on October 17 and we're wearing super cute t-shirts designed by TeePublic. You're all invited to be a friend of #ACEface and purchase your own shirt! All proceeds from the sales will be donated to the National Down Syndrome Society. You can also support Ace and all his friends by giving to our fundraising page for this year's NDSS Buddy Walk.
(Pick your own style and color! Kids sizes too!)
It's an honor to share my stories here. Thanks for reading and cheering for Ace from afar.